Arthritis National Research Foundation –
Jordan is a brave young girl battling juvenile arthritis and uveitis. Below she candidly answers some questions about her life with arthritis. She is one of the nearly 300,000 children reported to have arthritis in the United States. Through all the doctor visits, medications, tests and restrictions she continues to stay upbeat. She is an inspiration to those who meet her and we are honored to be able to share a little bit of what she goes through with you.
Having a little fun.
Age: 9, 10 in April
Age first diagnosed: 2 ½
What are you diagnosed with? Polyarticular JA and uveitis
What is the status of your disease? Active, remission, etc.? Active, I have never been in remission.
What treatment protocol have you undergone and what has been most effective for you? I’ve been on a lot of medicine in 7 years. Some include, Enbrel, Humira, Methotrexate, prednisone, Relafen, naproxen. Currently I’m on CellCept, Mobic and Remicade infusions are every 4 weeks.
Does your child go through this?
Discuss the impact of this disease in your life: I really can’t answer this because I’ve had JA for so long. I don’t know any different. Doctor appointments, medication, lab draws are all a normal part of my life.
At the Arthritis National Research Foundation we feel research is the key to finding new treatments and a cure. This is why we focus our efforts strictly on funding cutting-edge research. How do you feel about the research underway and what would you like to see happen? I’d like a cure!
Do you have a message you’d like to convey to others suffering with your disease or other arthritic diseases? You’re not alone.
Below is a video of Jordan getting a Humira shot. The video caption says she posts these videos because she wants other kids to know they are not alone. Such an inspiration to remember to appreciate each and every day. To help find a cure make a donation to The Kelly Award for juvenile arthritis research.
To keep up with Jordan you can follow her blog Warrior4jra.blogspot.com or her mother’s blog LifeAutoimmune.com. Her mother, Stacey, is also battling rheumatoid arthritis and we will highlight her in a future arthritis showcase.